My life’s been a handicap for the last 3 months due to the enormous prickly pain that I get when my body gets warm. Every episode of the reaction seems like an eternity and believe me, the pain is unbearable. Without medical insurance I can’t get it treated. And I’m afraid to go to urgent care or emergency room because that might cost too much. I took the risk of going to a county community hospital yesterday. The doctor doesn’t know what it is either, but have recommended me to take 2 benadryls every 4 hours and a tagamet twice each day. The goal is to block the histamine from every direction. I am recommended to see a dermatologist if that doesn’t work.
Yup, you guessed it, the Benadryl is kicking my ass right now. I have never felt so drowsy in my life. I’m willing to do anything though, just to see what happens. So far I have not gotten any reaction today. It has also been very cold, so I’m not sure if it’s from the medication or the cold weather. It might be from both. We’ll see what happens.
Dec 15, 2009- Tuesday
The 8 plus Benadryl and 2 tagamet per day has turned me into a zombie. I feel like I’m walking and snoozing every moment of the day. I’m so tired all the time. My eyeballs look like someone that hasn’t slept for days. Here is the good news. I’m still getting the reactions but at the minor level. Yesterday I was teased in the classroom by a classmate and got the major reaction like I did before I was heavily medicated. The many current minor reactions seem to be more on the feet and hands. I’m not quite sure why. I also noticed that the sensation felt different too. They seem minor but more like shrieking pain. I have not had the courage to venture in to the sunlight yet, and I probably will continue to avoid it a little longer. So basically I still have the symptoms but am able to tolerate the room temperature more now. I can’t wait for it to go away.
Dec 17, 2009 – Thursday
I took my last final last night. I got perfect scores on the finals in 2 of the 3 classes. Anyhow after class several of us went to a Japanese restaurant/karaoke/bar place. It was a little warm inside of the restaurant, so that put my body at the verge of getting the reaction. I did however get the reactions, but only when I participate in the conversation. I had to rush outside several times because of them. After the third episode I basically said to myself “screw it” and withheld my participation to a minimum. I thought it was odd that those reactions were so intense. I would have been able to tolerate the heat if I hadn’t participated in the conversation. Now I am questioning if the medication is working as I had thought, or at all. It’s no longer raining like the last many days and seems to be getting warmer according to the news. I fear that my condition will worsen.
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